Download Benefit Sharing: From Biodiversity to Human Genetics by Doris Schroeder, Julie Cook Lucas PDF

By Doris Schroeder, Julie Cook Lucas

Biomedical learn is more and more performed in low- and middle-income international locations. overseas consensus has principally been accomplished round the significance of legitimate consent and holding examine members from damage. yet what are the tasks of researchers and funders to proportion some great benefits of their learn with learn contributors and their groups? After starting off the felony, moral and conceptual frameworks for profit sharing, this assortment analyses seven old circumstances to spot the moral and coverage demanding situations that come up when it comes to profit sharing. a chain of concepts deal with attainable methods ahead to accomplish justice for learn individuals in low- and middle-income countries.

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Extra info for Benefit Sharing: From Biodiversity to Human Genetics

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The particular needs of the economically and medically disadvantaged must be recognized. Special attention is also required for those who cannot give or refuse consent for themselves, for those who may be subject to giving consent under duress, for those who will not benefit personally from the research and for those for whom the research is combined with care (WMA 2004). This article was heavily criticized for making everyone, and thereby no one, vulnerable. Forster et al. (2001) made this point very succinctly: The new declaration goes further [than the old one], making every conceivable person vulnerable, from patients with an illness, to those who cannot give consent, to healthy volunteers … The new declaration expands the category of vulnerability so broadly that it eliminates this category …; if everyone is vulnerable, no one is entitled to special protection.

Coding and, in particular, the anonymization of samples and data reduce most of these risks significantly. The collection of tissue samples and health data for databases, as well as the re-use of samples and data for purposes other than those originally intended, adds further risks and complications. 2 Exploring Central Philosophical Concepts 29 and indeed much more likely to occur, when the research participants are vulnerable. To correct the injustice, and thereby to prevent exploitation and protect the vulnerable, benefit sharing is required.

Right of everyone to the enjoyment of the highest attainable standard of physical and mental health (right to health). World Medical Association. net/en/20act ivities/20humanrights/10health/ WTO (2012) Statistics database: Agricultural products, raw materials, 2000, 2010. org/. Accessed 1 Aug 2012 Wynberg R, Schroeder D, Williams S, Vermeylen S (2009) Sharing benefits fairly: Decisionmaking and governance. In: Wynberg R, Schroeder D, Chennells R (eds) Indigenous peoples, consent and benefit sharing: Lessons from the San Hoodia case.

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